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Messages - Jay Murry

#1
To FCGrizzliesGrad and the rest of the Franklin fans...

My apologies for being confused about many things Franklin.  I'll do better tomorrow.
#2
Multi-Regional Topics / Re: Top 25 talk
February 08, 2025, 09:51:54 PM
It is fun to see the finished product, knowing that there are different interpretations of game results, different approaches of ranking teams, and pairs of eyes all across the country. At the end of the week, the final weekly poll is a pretty good blend of coffee from many kinds of beans.
#3

Hello All,

While I will be following from afar WashU's football efforts against North Central, it won't be idle following.

I will be in the midst of my Rett Gets Rocked 2023 24-hour ultramarathon at WashU to raise awareness of Rett syndrome and research funds to find a cure.  I'm starting around 8:00 Friday night (after I provide the call for the WashU-Saint Louis U. swimming and diving meet), and ending at 8:00 Saturday night. 

Rett syndrome is a neurological disorder caused by a gene mutation on the X chromosome.  It lays in the weeds until a child is between 6-18 months old, just when a child is learning to walk and talk.  Rett is like Lucy in the Peanuts comic strip when she pulls the ball away from Charlie Brown, as he tries to kick it.  Unlike Charlie Brown...when Rett pulls the ball away from children, they don't get a chance to get up and try again.  Children go into severe neurological regression; many end up in wheelchairs and most lose the ability to talk and to do sign language.  Those with Rett also are prone to seizures, extreme nerve pain, GI issues, breathing abnormalities, and eating difficulties that can all be life-threatening.

Researchers are relentless, providing hope on two fronts.  Back in March of this year, Daybue became the first FDA-approved drug to target the effects of Rett syndrome.  Daybue helps blunt some of the seizures and has helped improve some vocal and gross motor skills.  Gene replacement therapy clinical trials in two North American locations have helped one patient sit up independently for the first time in a decade, and to grasp objects for the first time since infancy.

It is this momentum of hope and progress that I am trying to assist and perpetuate.

If you would like to make a donation, click on this Rett Racers link:  https://rettracers.funraise.org/fundraiser/jaymurry

The families of children who have Rett and fight a tough fight every day, will be very grateful for your help.

Thank you for your time and consideration, and enjoy the games this weekend!
#4

Hello All,

While I will be following from afar WashU's football efforts against North Central, it won't be idle following.

I will be in the midst of my Rett Gets Rocked 2023 24-hour ultramarathon at WashU to raise awareness of Rett syndrome and research funds to find a cure.  I'm starting around 8:00 Friday night (after I provide the call for the WashU-Saint Louis U. swimming and diving meet), and ending at 8:00 Saturday night. 

Rett syndrome is a neurological disorder caused by a gene mutation on the X chromosome.  It lays in the weeds until a child is between 6-18 months old, just when a child is learning to walk and talk.  Rett is like Lucy in the Peanuts comic strip when she pulls the ball away from Charlie Brown, as he tries to kick it.  Unlike Charlie Brown...when Rett pulls the ball away from children, they don't get a chance to get up and try again.  Children go into severe neurological regression; many end up in wheelchairs and most lose the ability to talk and to do sign language.  Those with Rett also are prone to seizures, extreme nerve pain, GI issues, breathing abnormalities, and eating difficulties that can all be life-threatening.

Researchers are relentless, providing hope on two fronts.  Back in March of this year, Daybue became the first FDA-approved drug to target the effects of Rett syndrome.  Daybue helps blunt some of the seizures and has helped improve some vocal and gross motor skills.  Gene replacement therapy clinical trials in two North American locations have helped one patient sit up independently for the first time in a decade, and to grasp objects for the first time since infancy.

It is this momentum of hope and progress that I am trying to assist and perpetuate.

If you would like to make a donation, click on this Rett Racers link:  https://rettracers.funraise.org/fundraiser/jaymurry

The families of children who have Rett and fight a tough fight every day, will be very grateful for your help.

Thank you for your time and consideration, and enjoy the games this weekend!
#5

Hello All,

While I will be following from afar WashU's efforts against North Central Saturday, it won't be idle following.

I will be in the midst of my Rett Gets Rocked 2023 24-hour ultramarathon at WashU to raise awareness of Rett syndrome and research funds to find a cure.  I'm starting around 8:00 Friday night (after I provide the call for the WashU-Saint Louis U. swimming and diving meet), and ending at 8:00 Saturday night. 

Rett syndrome is a neurological disorder caused by a gene mutation on the X chromosome.  It lays in the weeds until a child is between 6-18 months old, just when a child is learning to walk and talk.  Rett is like Lucy in the Peanuts comic strip when she pulls the ball away from Charlie Brown, as he tries to kick it.  Unlike Charlie Brown...when Rett pulls the ball away from children, they don't get a chance to get up and try again.  Children go into severe neurological regression; many end up in wheelchairs and most lose the ability to talk and to do sign language.  Those with Rett also are prone to seizures, extreme nerve pain, GI issues, breathing abnormalities, and eating difficulties that can all be life-threatening.

Researchers are relentless, providing hope on two fronts.  Back in March of this year, Daybue became the first FDA-approved drug to target the effects of Rett syndrome.  Daybue helps blunt some of the seizures and has helped improve some vocal and gross motor skills.  Gene replacement therapy clinical trials in two North American locations have helped one patient sit up independently for the first time in a decade, and to grasp objects for the first time since infancy.

It is this momentum of hope and progress that I am trying to assist and perpetuate.

If you would like to make a donation, click on this Rett Racers link:  https://rettracers.funraise.org/fundraiser/jaymurry

The families of children who have Rett and fight a tough fight every day, will be very grateful for your help.

Thank you for your time and consideration, and enjoy the games this weekend!
#6

Hello All,

While I will be following from afar WashU's efforts against North Central, it won't be idle following.

I will be in the midst of my Rett Gets Rocked 2023 24-hour ultramarathon at WashU to raise awareness of Rett syndrome and research funds to find a cure.  I'm starting around 8:00 Friday night (after I provide the call for the WashU-Saint Louis U. swimming and diving meet), and ending at 8:00 Saturday night. 

Rett syndrome is a neurological disorder caused by a gene mutation on the X chromosome.  It lays in the weeds until a child is between 6-18 months old, just when a child is learning to walk and talk.  Rett is like Lucy in the Peanuts comic strip when she pulls the ball away from Charlie Brown, as he tries to kick it.  Unlike Charlie Brown...when Rett pulls the ball away from children, they don't get a chance to get up and try again.  Children go into severe neurological regression; many end up in wheelchairs and most lose the ability to talk and to do sign language.  Those with Rett also are prone to seizures, extreme nerve pain, GI issues, breathing abnormalities, and eating difficulties that can all be life-threatening.

Researchers are relentless, providing hope on two fronts.  Back in March of this year, Daybue became the first FDA-approved drug to target the effects of Rett syndrome.  Daybue helps blunt some of the seizures and has helped improve some vocal and gross motor skills.  Gene replacement therapy clinical trials in two North American locations have helped one patient sit up independently for the first time in a decade, and to grasp objects for the first time since infancy.

It is this momentum of hope and progress that I am trying to assist and perpetuate.

If you would like to make a donation, click on this Rett Racers link:  https://rettracers.funraise.org/fundraiser/jaymurry

The families of children who have Rett and fight a tough fight every day, will be very grateful for your help.

Thank you for your time and consideration, and enjoy the games this weekend!
#7

Hello All,

While I will be following from afar WashU's efforts against North Central, it won't be idle following.

I will be in the midst of my Rett Gets Rocked 2023 24-hour ultramarathon at WashU to raise awareness of Rett syndrome and research funds to find a cure.  I'm starting around 8:00 Friday night (after I provide the call for the WashU-Saint Louis U. swimming and diving meet), and ending at 8:00 Saturday night. 

Rett syndrome is a neurological disorder caused by a gene mutation on the X chromosome.  It lays in the weeds until a child is between 6-18 months old, just when a child is learning to walk and talk.  Rett is like Lucy in the Peanuts comic strip when she pulls the ball away from Charlie Brown, as he tries to kick it.  Unlike Charlie Brown...when Rett pulls the ball away from children, they don't get a chance to get up and try again.  Children go into severe neurological regression; many end up in wheelchairs and most lose the ability to talk and to do sign language.  Those with Rett also are prone to seizures, extreme nerve pain, GI issues, breathing abnormalities, and eating difficulties that can all be life-threatening.

Researchers are relentless, providing hope on two fronts.  Back in March of this year, Daybue became the first FDA-approved drug to target the effects of Rett syndrome.  Daybue helps blunt some of the seizures and has helped improve some vocal and gross motor skills.  Gene replacement therapy clinical trials in two North American locations have helped one patient sit up independently for the first time in a decade, and to grasp objects for the first time since infancy.

It is this momentum of hope and progress that I am trying to assist and perpetuate.

If you would like to make a donation, click on this Rett Racers link:  https://rettracers.funraise.org/fundraiser/jaymurry

The families of children who have Rett and fight a tough fight every day, will be very grateful for your help.

Thank you for your time and consideration, and enjoy the games this weekend!
#8

Hello All,

While I will be following from afar WashU's efforts against North Central, it won't be idle following.

I will be in the midst of my Rett Gets Rocked 2023 24-hour ultramarathon at WashU to raise awareness of Rett syndrome and research funds to find a cure.  I'm starting around 8:00 Friday night (after I provide the call for the WashU-Saint Louis U. swimming and diving meet), and ending at 8:00 Saturday night. 

Rett syndrome is a neurological disorder caused by a gene mutation on the X chromosome.  It lays in the weeds until a child is between 6-18 months old, just when a child is learning to walk and talk.  Rett is like Lucy in the Peanuts comic strip when she pulls the ball away from Charlie Brown, as he tries to kick it.  Unlike Charlie Brown...when Rett pulls the ball away from children, they don't get a chance to get up and try again.  Children go into severe neurological regression; many end up in wheelchairs and most lose the ability to talk and to do sign language.  Those with Rett also are prone to seizures, extreme nerve pain, GI issues, breathing abnormalities, and eating difficulties that can all be life-threatening.

Researchers are relentless, providing hope on two fronts.  Back in March of this year, Daybue became the first FDA-approved drug to target the effects of Rett syndrome.  Daybue helps blunt some of the seizures and has helped improve some vocal and gross motor skills.  Gene replacement therapy clinical trials in two North American locations have helped one patient sit up independently for the first time in a decade, and to grasp objects for the first time since infancy.

It is this momentum of hope and progress that I am trying to assist and perpetuate.

If you would like to make a donation, click on this Rett Racers link:  https://rettracers.funraise.org/fundraiser/jaymurry

The families of children who have Rett and fight a tough fight every day, will be very grateful for your help.

Thank you for your time and consideration, and enjoy the games this weekend!
#9

Hello All,

While I will be following from afar WashU's efforts against North Central, it won't be idle following.

I will be in the midst of my Rett Gets Rocked 2023 24-hour ultramarathon at WashU to raise awareness of Rett syndrome and research funds to find a cure.  I'm starting around 8:00 Friday night (after I provide the call for the WashU-Saint Louis U. swimming and diving meet), and ending at 8:00 Saturday night. 

Rett syndrome is a neurological disorder caused by a gene mutation on the X chromosome.  It lays in the weeds until a child is between 6-18 months old, just when a child is learning to walk and talk.  Rett is like Lucy in the Peanuts comic strip when she pulls the ball away from Charlie Brown, as he tries to kick it.  Unlike Charlie Brown...when Rett pulls the ball away from children, they don't get a chance to get up and try again.  Children go into severe neurological regression; many end up in wheelchairs and most lose the ability to talk and to do sign language.  Those with Rett also are prone to seizures, extreme nerve pain, GI issues, breathing abnormalities, and eating difficulties that can all be life-threatening.

Researchers are relentless, providing hope on two fronts.  Back in March of this year, Daybue became the first FDA-approved drug to target the effects of Rett syndrome.  Daybue helps blunt some of the seizures and has helped improve some vocal and gross motor skills.  Gene replacement therapy clinical trials in two North American locations have helped one patient sit up independently for the first time in a decade, and to grasp objects for the first time since infancy.

It is this momentum of hope and progress that I am trying to assist and perpetuate.

If you would like to make a donation, click on this Rett Racers link:  https://rettracers.funraise.org/fundraiser/jaymurry

The families of children who have Rett and fight a tough fight every day, will be very grateful for your help.

Thank you for your time and consideration, and enjoy the games this weekend!
#10

Hello All,

While I will be following from afar WashU's efforts against North Central Saturday, it won't be idle following.

I will be in the midst of my Rett Gets Rocked 2023 24-hour ultramarathon at WashU to raise awareness of Rett syndrome and research funds to find a cure.  I'm starting around 8:00 Friday night (after I provide the call for the WashU-Saint Louis U. swimming and diving meet), and ending at 8:00 Saturday night. 

Rett syndrome is a neurological disorder caused by a gene mutation on the X chromosome.  It lays in the weeds until a child is between 6-18 months old, just when a child is learning to walk and talk.  Rett is like Lucy in the Peanuts comic strip when she pulls the ball away from Charlie Brown, as he tries to kick it.  Unlike Charlie Brown...when Rett pulls the ball away from children, they don't get a chance to get up and try again.  Children go into severe neurological regression; many end up in wheelchairs and most lose the ability to talk and to do sign language.  Those with Rett also are prone to seizures, extreme nerve pain, GI issues, breathing abnormalities, and eating difficulties that can all be life-threatening.

Researchers are relentless, providing hope on two fronts.  Back in March of this year, Daybue became the first FDA-approved drug to target the effects of Rett syndrome.  Daybue helps blunt some of the seizures and has helped improve some vocal and gross motor skills.  Gene replacement therapy clinical trials in two North American locations have helped one patient sit up independently for the first time in a decade, and to grasp objects for the first time since infancy.

It is this momentum of hope and progress that I am trying to assist and perpetuate.

If you would like to make a donation, click on this Rett Racers link:  https://rettracers.funraise.org/fundraiser/jaymurry

The families of children who have Rett and fight a tough fight every day, will be very grateful for your help.

Thank you for your time and consideration, and enjoy the games this weekend!
#11

Hello All,

While I will be following from afar WashU's efforts against North Central Saturday, it won't be idle following.

I will be in the midst of my Rett Gets Rocked 2023 24-hour ultramarathon at WashU to raise awareness of Rett syndrome and research funds to find a cure.  I'm starting around 8:00 Friday night (after I provide the call for the WashU-Saint Louis U. swimming and diving meet), and ending at 8:00 Saturday night. 

Rett syndrome is a neurological disorder caused by a gene mutation on the X chromosome.  It lays in the weeds until a child is between 6-18 months old, just when a child is learning to walk and talk.  Rett is like Lucy in the Peanuts comic strip when she pulls the ball away from Charlie Brown, as he tries to kick it.  Unlike Charlie Brown...when Rett pulls the ball away from children, they don't get a chance to get up and try again.  Children go into severe neurological regression; many end up in wheelchairs and most lose the ability to talk and to do sign language.  Those with Rett also are prone to seizures, extreme nerve pain, GI issues, breathing abnormalities, and eating difficulties that can all be life-threatening.

Researchers are relentless, providing hope on two fronts.  Back in March of this year, Daybue became the first FDA-approved drug to target the effects of Rett syndrome.  Daybue helps blunt some of the seizures and has helped improve some vocal and gross motor skills.  Gene replacement therapy clinical trials in two North American locations have helped one patient sit up independently for the first time in a decade, and to grasp objects for the first time since infancy.

It is this momentum of hope and progress that I am trying to assist and perpetuate.

If you would like to make a donation, click on this Rett Racers link:  https://rettracers.funraise.org/fundraiser/jaymurry

The families of children who have Rett and fight a tough fight every day, will be very grateful for your help.

Thank you for your time and consideration, and enjoy the games this weekend!
#12

Hello All,

While I will be following from afar WashU's efforts against North Central Saturday, it won't be idle following.

I will be in the midst of my Rett Gets Rocked 2023 24-hour ultramarathon at WashU to raise awareness of Rett syndrome and research funds to find a cure.  I'm starting around 8:00 Friday night (after I provide the call for the WashU-Saint Louis U. swimming and diving meet), and ending at 8:00 Saturday night. 

Rett syndrome is a neurological disorder caused by a gene mutation on the X chromosome.  It lays in the weeds until a child is between 6-18 months old, just when a child is learning to walk and talk.  Rett is like Lucy in the Peanuts comic strip when she pulls the ball away from Charlie Brown, as he tries to kick it.  Unlike Charlie Brown...when Rett pulls the ball away from children, they don't get a chance to get up and try again.  Children go into severe neurological regression; many end up in wheelchairs and most lose the ability to talk and to do sign language.  Those with Rett also are prone to seizures, extreme nerve pain, GI issues, breathing abnormalities, and eating difficulties that can all be life-threatening.

Researchers are relentless, providing hope on two fronts.  Back in March of this year, Daybue became the first FDA-approved drug to target the effects of Rett syndrome.  Daybue helps blunt some of the seizures and has helped improve some vocal and gross motor skills.  Gene replacement therapy clinical trials in two North American locations have helped one patient sit up independently for the first time in a decade, and to grasp objects for the first time since infancy.

It is this momentum of hope and progress that I am trying to assist and perpetuate.

If you would like to make a donation, click on this Rett Racers link:  https://rettracers.funraise.org/fundraiser/jaymurry

The families of children who have Rett and fight a tough fight every day, will be very grateful for your help.

Thank you for your time and consideration, and enjoy the games this weekend!
#13

Hello All,

While I will be following from afar WashU's efforts against North Central, it won't be idle following.

I will be in the midst of my Rett Gets Rocked 2023 24-hour ultramarathon at WashU to raise awareness of Rett syndrome and research funds to find a cure.  I'm starting around 8:00 Friday night (after I provide the call for the WashU-Saint Louis U. swimming and diving meet), and ending at 8:00 Saturday night. 

Rett syndrome is a neurological disorder caused by a gene mutation on the X chromosome.  It lays in the weeds until a child is between 6-18 months old, just when a child is learning to walk and talk.  Rett is like Lucy in the Peanuts comic strip when she pulls the ball away from Charlie Brown, as he tries to kick it.  Unlike Charlie Brown...when Rett pulls the ball away from children, they don't get a chance to get up and try again.  Children go into severe neurological regression; many end up in wheelchairs and most lose the ability to talk and to do sign language.  Those with Rett also are prone to seizures, extreme nerve pain, GI issues, breathing abnormalities, and eating difficulties that can all be life-threatening.

Researchers are relentless, providing hope on two fronts.  Back in March of this year, Daybue became the first FDA-approved drug to target the effects of Rett syndrome.  Daybue helps blunt some of the seizures and has helped improve some vocal and gross motor skills.  Gene replacement therapy clinical trials in two North American locations have helped one patient sit up independently for the first time in a decade, and to grasp objects for the first time since infancy.

It is this momentum of hope and progress that I am trying to assist and perpetuate.

If you would like to make a donation, click on this Rett Racers link:  https://rettracers.funraise.org/fundraiser/jaymurry

The families of children who have Rett and fight a tough fight every day, will be very grateful for your help.

Thank you for your time and consideration, and enjoy the games this weekend!
#14

Hello All,

While I will be following from afar WashU's efforts against North Central, it won't be idle following.

I will be in the midst of my Rett Gets Rocked 2023 24-hour ultramarathon at WashU to raise awareness of Rett syndrome and research funds to find a cure.  I'm starting around 8:00 Friday night (after I provide the call for the WashU-Saint Louis U. swimming and diving meet), and ending at 8:00 Saturday night. 

Rett syndrome is a neurological disorder caused by a gene mutation on the X chromosome.  It lays in the weeds until a child is between 6-18 months old, just when a child is learning to walk and talk.  Rett is like Lucy in the Peanuts comic strip when she pulls the ball away from Charlie Brown, as he tries to kick it.  Unlike Charlie Brown...when Rett pulls the ball away from children, they don't get a chance to get up and try again.  Children go into severe neurological regression; many end up in wheelchairs and most lose the ability to talk and to do sign language.  Those with Rett also are prone to seizures, extreme nerve pain, GI issues, breathing abnormalities, and eating difficulties that can all be life-threatening.

Researchers are relentless, providing hope on two fronts.  Back in March of this year, Daybue became the first FDA-approved drug to target the effects of Rett syndrome.  Daybue helps blunt some of the seizures and has helped improve some vocal and gross motor skills.  Gene replacement therapy clinical trials in two North American locations have helped one patient sit up independently for the first time in a decade, and to grasp objects for the first time since infancy.

It is this momentum of hope and progress that I am trying to assist and perpetuate.

If you would like to make a donation, click on this Rett Racers link:  https://rettracers.funraise.org/fundraiser/jaymurry

The families of children who have Rett and fight a tough fight every day, will be very grateful for your help.

Thank you for your time and consideration, and enjoy the games this weekend!
#15

Hello All,

While I will be following from afar WashU's efforts against North Central Saturday, it won't be idle following.

I will be in the midst of my Rett Gets Rocked 2023 24-hour ultramarathon at WashU to raise awareness of Rett syndrome and research funds to find a cure.  I'm starting around 8:00 Friday night (after I provide the call for the WashU-Saint Louis U. swimming and diving meet), and ending at 8:00 Saturday night. 

Rett syndrome is a neurological disorder caused by a gene mutation on the X chromosome.  It lays in the weeds until a child is between 6-18 months old, just when a child is learning to walk and talk.  Rett is like Lucy in the Peanuts comic strip when she pulls the ball away from Charlie Brown, as he tries to kick it.  Unlike Charlie Brown...when Rett pulls the ball away from children, they don't get a chance to get up and try again.  Children go into severe neurological regression; many end up in wheelchairs and most lose the ability to talk and to do sign language.  Those with Rett also are prone to seizures, extreme nerve pain, GI issues, breathing abnormalities, and eating difficulties that can all be life-threatening.

Researchers are relentless, providing hope on two fronts.  Back in March of this year, Daybue became the first FDA-approved drug to target the effects of Rett syndrome.  Daybue helps blunt some of the seizures and has helped improve some vocal and gross motor skills.  Gene replacement therapy clinical trials in two North American locations have helped one patient sit up independently for the first time in a decade, and to grasp objects for the first time since infancy.

It is this momentum of hope and progress that I am trying to assist and perpetuate.

If you would like to make a donation, click on this Rett Racers link:  https://rettracers.funraise.org/fundraiser/jaymurry

The families of children who have Rett and fight a tough fight every day, will be very grateful for your help.

Thank you for your time and consideration, and enjoy the games this weekend!